16th June 2012

Today was Aydan's nanny's birthday, so we all went to visit her.

Firstly he emptied her paper bin out all over the floor, but then he started to do this 

It looks like he is having some kind of sensory overload? He did it for about half an hour in total, he would get distracted by something, but a few seconds later go back to doing it! I can only assume that he either liked the feel of the fabric, or he was getting over tired, but because of the hand stimming, rocking, head banging and finger clicking that he's slowly started developing over the past few months, that it is starting to look more and  more like he has autism.

I will mention these video's to his consultant when I next see him.

Again today he has also had what looks like another absent seizure, and again this lasted for around half an hour. I have 2 videos of this, and you can see on the last one that he starts to come round from it at the end.

15th June 2012

Tonight we started with what looks like another type of seizure, although I wasn't sure, but recorded it anyway.

At first I thought that he was just really tired, so I put him in his bouncer and gave him a bottle. He would look at me, but it was like he was looking through me rather than at me.

About half an hour later he just suddenly snapped out of it and grabbed the nearest toy to him and was squealing in delight, just like he normally does!

I rang the ward and managed to speak to his consultant, he said that because he has started on a higher dose of medicine to wait until at least Monday to see if that helps.

This is the video

14th June 2012

Thought I would include some video's I've taken over the past week of him having these odd twitches

It's really hard to see as my hand isn't the steadiest

13th June 2012

Managed to speak to Aydan's consultant today, I discussed the random twitching he's been doing lately that reminds me of drinking too much caffeine and he has asked me to put his medicine up to 2.5mls twice a day as a start.

He said that it could be because Aydan has put on weight and he isn't getting quite enough medicine for his body weight now, so he suggested putting it up by 0.5mls to see how he goes on.

I mentioned the fact that Aydan has also had constant loose stools lately and that he's exploding out of his nappy, at least twice a day, and did he think it was connected with the medicine? He said that it could be, but for now I've got to do the whole pot and wooden stick thing and take it to the doctors for sampling to rule out anything sinister!

Oh joy!! Lol

So I have started him on the higher dose of medicine tonight and I hope we get some results quickly.

In the mean time I'm cutting down on his wheat intake to see whether that improves his exploda nappy situation! Just something I'm trying myself, not something I've been asked to try!

10th June 2012

One of my friends has just pointed me in the direction of this diet!

It looks very interesting and certainly needs considering and discussing with his consultant :0)

http://en.m.wikipedia.org/wiki/Ketogenic_diet

29th May 2012

Aydan had his first seizure/spasms in a long while tonight. He was flat out asleep and woke up screaming!

He looked so terrified the poor little man, but he hasn't had one for a while so its likely he's forgotten what they feel like!

He screamed intermittently for about 5 minutes, stopping when he was having a spasm, then screaming again, until they calmed down enough for them to still upset him, but not as much!

The seizure lasted for approximately 11 minutes, but soon went back to sleep!

I presume he had that one because he had gotten too hot and sweaty, he also needs his medicine dose upping because he has put on weight since they started giving it him.

28th May 2012

Aydan ended up going into hospital for a bit today because the chemist failed to get him his medicine in, after a weeks notice, so he had to have some out of their emergency supply cupboard! I wasn't happy at all with the chemist, to say the least!

Whilst I was there I mentioned Aydan's jittering that he's been doing lately, which reminds me a bit of drinking too much caffeine! These episode sometimes last for 5 minutes, when he is awake or asleep. He also gets random flinching from his head and limbs throughout the day. The consultant said it sounds like he needs his medicine dose upping, and that he's possibly having a different type of seizure, and might need more medicine, but Aydan's consultant is away on holiday for 2 weeks so they won't do anything until he gets back!

I also mentioned the fact that he still wakes up 5/6 times throughout the night, but they haven't commented on that.