Today I went in and found Aydan wearing his cooling blanket again! I believe his temperature went up in the night and the nurse already had the window open, him sat in a nappy and the fan on, so decided it was for the best!
I believe there was some concern over his CO2 levels too, so his ventilation has been put up more. His CO2 levels were around 72 most of the day.
I have been asking the doctors about getting him on some probiotics because he has had terrible diarrhoea since he's been on the antibiotics. They have had a word with the pharmacists and they said that I can give him some, but they don't have any.
After a bit if research, I couldn't really did any liquid ones, and didn't want to try him on the yogurts as dairy doesn't seen to agree with him, so I have just bought him some normal acidophilus and they are going to add it to his milk :0)
I'm not sure it's going to work! I have a feeling it might go too clumpy, but its worth a try!
Aydan had all of his stitches removed today too! His war wounds already look loads better, and they have said that once they have healed a bit and the scabs have gone, that I can start to massage the scars to help them!
I asked on Aydan's Facebook group what people thought was the best thing to put on scars, and out of the suggestions I have decided I'm going to try coconut oil :0)
Aydan's doctors have decided that because he doesn't seem to be suffering any withdrawal symptoms, they are going to start dropping the sedatives a bit faster.
I've had a good chat with the doctors today and they have said that his chest X-rays are showing that his lungs are near enough perfect again, but there must be something going on that they don't know about because with lungs looking that good they would expect him to be off the ventilator.
They're not sure whether the brain damage is effecting his breathing, Whether the surgery has damaged his diaphragm, or whether he has a lot of scarring inside his lungs, or whether its still all down to the sedatives and he's still not strong enough.
We have also noticed that Aydan's eyes now seem to be pointing in separate directions and he's still not trying to focus on anything, again they think that might be the sedatives/brain damage.
They are going to order some more specialist tests. If nothing shows up then they are going to contact some actual specialists and see if they can suggest anything! I have a feeling its going to be a case of 'wait and see' personally!
Sunday, 13 January 2013
Saturday, 12 January 2013
12th January 2013
Aydan's temperature has been a bit naughty again today :0(
I feel like his high temps are holding him back from recovering, but they don't know what's causing them still!
Everything has been off today, his CO2 levels in his blood have been back up in the 90s and his pulse and blood pressure been up again.
I managed to convince the nurses to take the incontinence sheets out from under him, as they really don't help his temperature.
I also managed to get them to put him lying on his belly again, as that really helped with his CO2 levels as they went up to 115 at one point. His O2 levels have been around 92% all day.
Since being on his belly his CO2 levels have been around 88, so a slight improvement! I have a feeling that they he been getting overly excited again and been weaning him off the ventilator too quickly, so they have put the pressure up again and increased the rate.
It makes me feel very sad when he has another bad day after doing so well :0( although I do have to say that he is only on 45% oxygen, and is only on around 14 gentle puffs an hour, so they can increase his ventilation a lot of need be!! His PH of his blood has been fine, so he's compensating for the high CO2 levels!!
As you can see by the picture, he is looking really happy now he is back on his belly!
There have also been concerns over blood on his left lung again, and possible signs of an infection around his left lung, but his Infection markers have been coming down still, so they're not sure!
Aydan had also had his catheter removed today! :0)
We'll soon have rid of all those wires and tubes!!
I feel like his high temps are holding him back from recovering, but they don't know what's causing them still!
Everything has been off today, his CO2 levels in his blood have been back up in the 90s and his pulse and blood pressure been up again.
I managed to convince the nurses to take the incontinence sheets out from under him, as they really don't help his temperature.
I also managed to get them to put him lying on his belly again, as that really helped with his CO2 levels as they went up to 115 at one point. His O2 levels have been around 92% all day.
Since being on his belly his CO2 levels have been around 88, so a slight improvement! I have a feeling that they he been getting overly excited again and been weaning him off the ventilator too quickly, so they have put the pressure up again and increased the rate.
It makes me feel very sad when he has another bad day after doing so well :0( although I do have to say that he is only on 45% oxygen, and is only on around 14 gentle puffs an hour, so they can increase his ventilation a lot of need be!! His PH of his blood has been fine, so he's compensating for the high CO2 levels!!
As you can see by the picture, he is looking really happy now he is back on his belly!
There have also been concerns over blood on his left lung again, and possible signs of an infection around his left lung, but his Infection markers have been coming down still, so they're not sure!
Aydan had also had his catheter removed today! :0)
We'll soon have rid of all those wires and tubes!!
11th January 2013
Today was a very exciting day involving his physio!
I was asked to bring in one of his sisters or brother, so as I'd promised Poppy she could come next, Poppy came!
It was great, they took Aydan out of bed and put him on a mat on the floor!
Aydan was the most awake I've seen him in a long time!
Although he was a bit naughty at one point and pulled his cannula out, and we had a lot of blood everywhere! Lol!!
He has even been trying to open his eyes!!
I was asked to bring in one of his sisters or brother, so as I'd promised Poppy she could come next, Poppy came!
It was great, they took Aydan out of bed and put him on a mat on the floor!
Aydan was the most awake I've seen him in a long time!
Although he was a bit naughty at one point and pulled his cannula out, and we had a lot of blood everywhere! Lol!!
He has even been trying to open his eyes!!
10th January 2013
Noooooooo!!!
They rolled Aydan over today and the poor little man has bald patches appearing on the back of his head!! Sob!!
Mind the nurses have been very surprised that he hasn't already lost all his hair because apparently when your body is concentrating on mending itself, it leaves out the unimportant stuff like hair!
My poorl little squishy! Lol!!
They rolled Aydan over today and the poor little man has bald patches appearing on the back of his head!! Sob!!
Mind the nurses have been very surprised that he hasn't already lost all his hair because apparently when your body is concentrating on mending itself, it leaves out the unimportant stuff like hair!
My poorl little squishy! Lol!!
9th January 2013
So today was a very good day.
They have decided that he doesn't need splints for his feet because his feet are OK!
Aydan got weighed, so of course I got to have my first cuddle in nearly 8 weeks!!! :0D there is a picture below! :0)
He is now 13.9kg, instead of 13kg when he came in! Aydan likes to be backwards and actually put weight ON whilst in hospital!! Lmao!!
He also had his first session of physio that wasn't just on his chest! Aydan was made to sit up and then was moved in circular movements to help strengthen his core muscles!! He looked so relaxed it was great!!
They are also slowly taking him off the sedatives and hope to have him off then by next week!
They have decided that he doesn't need splints for his feet because his feet are OK!
Aydan got weighed, so of course I got to have my first cuddle in nearly 8 weeks!!! :0D there is a picture below! :0)
He is now 13.9kg, instead of 13kg when he came in! Aydan likes to be backwards and actually put weight ON whilst in hospital!! Lmao!!
He also had his first session of physio that wasn't just on his chest! Aydan was made to sit up and then was moved in circular movements to help strengthen his core muscles!! He looked so relaxed it was great!!
They are also slowly taking him off the sedatives and hope to have him off then by next week!
8th January 2013
Today was another good news bad news day.
Aydan's neurologist suggested that he went for an MRI because of the concerns over his lack of movement and high temps.
So the MRI has shown that Aydan has suffered brain damage at some point since his CT scan a few weeks ago.
They said the brain damage was in the top right of his brain, something to do with the sensory part, so may affect the way he senses things, and may also affect movement on the left side of his body.
They don't know what has caused the brain damage, it could be a clot, it could be a bleed, it could be lack of oxygen! They said they will probably never know :0(
Having said that though he is moving around an awful lot more than he has been, so its looking promising.
They have said tomorrow that they are going to have a word with physio and hopefully get him some splints for his feet, and a new mattress so they can start sitting him up!
There is very exciting news too!! Aydan is going to be weighed tomorrow!!
Squeeeeee!!!!! :0D
Aydan's neurologist suggested that he went for an MRI because of the concerns over his lack of movement and high temps.
So the MRI has shown that Aydan has suffered brain damage at some point since his CT scan a few weeks ago.
They said the brain damage was in the top right of his brain, something to do with the sensory part, so may affect the way he senses things, and may also affect movement on the left side of his body.
They don't know what has caused the brain damage, it could be a clot, it could be a bleed, it could be lack of oxygen! They said they will probably never know :0(
Having said that though he is moving around an awful lot more than he has been, so its looking promising.
They have said tomorrow that they are going to have a word with physio and hopefully get him some splints for his feet, and a new mattress so they can start sitting him up!
There is very exciting news too!! Aydan is going to be weighed tomorrow!!
Squeeeeee!!!!! :0D
7th January 2013
Today there was concerns over Aydan's spleen.
Apparently you could feel it really well, and normally you can't feel it at all.
An ultrasound confirmed that his spleen was definitely enlarged, and I'm sure the sonographer said it was the size of an average 4/5 year olds.
He has been put back on antibiotics today and antifungals, as his infection markers have started to rise.
They are still concerned about the lack of movement he is doing, so have asked his neurologist to come and see him.
They have been mentioning a condition where patients can get extreme muscle weakness, which would mean Aydan's recovery time could be much longer.
Tonight they are trying something new as his CO2 levels have been quite high, so they have put him on his belly!!
Little man looked VERY comfy I have to say! :0D
Apparently you could feel it really well, and normally you can't feel it at all.
An ultrasound confirmed that his spleen was definitely enlarged, and I'm sure the sonographer said it was the size of an average 4/5 year olds.
He has been put back on antibiotics today and antifungals, as his infection markers have started to rise.
They are still concerned about the lack of movement he is doing, so have asked his neurologist to come and see him.
They have been mentioning a condition where patients can get extreme muscle weakness, which would mean Aydan's recovery time could be much longer.
Tonight they are trying something new as his CO2 levels have been quite high, so they have put him on his belly!!
Little man looked VERY comfy I have to say! :0D
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