Friday 31 January 2014

29th January 2014

So today Aydan went in for his PEG change to a Mic-key button! We didn't announce it on his Facebook page (hope for Aydan, his fight against tuberous sclerosis) because we didn't want people to worry! And then I just never posted about it! Some family still haven't seen it yet!!!

Well the day started off alright, he was to be nil by mouth from 7am so I got up early to give him some toast!

On the way to the hospital we got a phone call to say that his operation had been cancelled as they had no bed on HDU!! Because he hasn't been to Alder Hey for a long while, it was still on the system that he was on oxygen, so they believed that he would need extra special care after the anaesthetic! I told them that we were nearly there and was coming in anyway! There was a much lengthy debate and we managed to get them I agree to talk to the consultants! 

This was Aydan entertaining himself while waiting! 

By dinner time we had been moved from the beginning of the list, all the way to the back! Aydan was getting very grumpy and hungry!!!

Some point in the afternoon they agreed that they would do the operation for him, but because last time he was there, he had MRSA and they had to do him last!!! I was very annoyed!!!

He got dressed into a hospital gown and we tried very hard to keep him happy! The nurses even have him a special teddy bear to try and help!

We ended up being taken to the ENT ward and he managed to calm down a bit by watching Peppa pig! It was about 6.30pm by the time they took him for his operation and he had gone nearly a whole day without food!!!

The operation was very quick, and giving him the anaesthetic this time was so much better than the very first time he had an MRI and they pinned him down! This time he just lay licking the mask! Lol!!!

An hour after the operation, 2 rounds of toast and a drink later and we managed to finally take him home!!

This is his new Mick-key button :0)



25th December 2013

Well today was Xmas day, and after last year, this year is like a dream!!

We have gone a bit over board today, and ended up spending the whole day opening presents! Oops!!

It was so nice watching Aydan eating a pig in blanket! You will have no idea how much I longed for that last year!! 

Here are some pics of the great day!!