Today Aydan had an appointment to see his consultant.
I really like that man, he has always been so pleasant and helpful for us.
Within the half an hour that we were there, he has referred Aydan to a dietitian to look into the ketogenic diet, and helping to get me on a course for some rescue medicine so that we might still be able to go on holiday! :0)
No news about the genetics testing yet, but he is going to try and chase those results up for us.
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