18th March 2012

Today was mothers day, and as my ex had my eldest 3 children, Aydan, Aydan's daddy, and myself went to my mum's for dinner.

Aydan was perfectly fine, he'd eaten all of his dinner, we'd gone for a walk around a shop, and then we'd called to see my nana and grandad, where he was sat happily playing on the floor.

It took us a couple of minutes to realise, but every time he sat up he kept falling back over again. He's a very active baby anyway, which is why we never noticed at first, always on the move. 

He was doing those really weird jerky movements again.

Aydan's daddy scooped him up and we watched him doing it.

It's really unusual because it's hard to call them a seizure because he's completely coherent in between the jerking movements, whatever was happening to him didn't seem to bother him, I suppose it's a bit like having Tourettes and having those 'tics' where your body does stuff of its own accord. So trying not to scare my nana and grandad, we pretended that everything was fine, and while they'd nipped out of the room I mentioned that we'd run him up to the out of hours doctors when we'd left.

Aydan slept for a short while, and upon waking he started to have another bout of these weird jerking movements. We said our goodbyes and headed straight for our out of hours Doctors, which is in the same place as the A&E department.

The woman behind the desk told us that we'd need to be seen by someone from A&E, so we went and booked in there, where we proceeded to wait for what felt like hours!!!

Eventually we were admitted to the children's ward where we sat waiting for someone to come and see us.

2am in the morning (yeah, we were really waiting for that long!!) a consultant came to talk to us, as just as she started asking us the questions which we'd been asked over and over again since 6pm, Aydan started to  do his jerking movements again.

I was actually relieved, I know that sounds awful to say, wishing your son to have one of his 'seizures' or whatever you want to call them, but I knew that if they didn't see what was happening that we would probably get brushed under the carpet and told to come back if he had another.

The consultant went to get another consultant, and the pair of them stood and observed Aydan while he was having them.

Also by another coincidence, Aydan happened to be just in his nappy as he had just been weighed.

One of the consultants asked me about a white patch of skin on his back. I had never seen this white patch of skin before, so knew it wasn't a birthmark, but it just looked like when you've been touching your own skin for a while and all the blood has drained from it.

The consultants said then that Aydan would be in hospital for a few days until they had figured out what was happening with him.

Aydan's daddy went home for the night and I prepared for a night of no sleep again!