This morning, after feeling like waiting around for days, things began to move really quickly!!!
We were told that Aydan was down for an emergency MRI (Magnetic Resonance Imaging) and a Kidney/Renal Ultrasound, and that he would be having an EEG (Electroencephalography) we also had a UV light test, which is basically where they get a UV light and hold it over his skin to look for white patches, also known as Ovoid or ash leaf-shaped white macules, apparently 3 or more white spots can indicate Tuberous Sclerosis Complex (TSC)
It turns out that Aydan's skin had lots of these white patches, I have added a picture below, but it's not as easy to see them without a UV light!
We were told to prepare for the diagnosis of Tuberous Sclerosis Complex but that we wouldn't know the true diagnosis until they'd run some other tests.
Just before lunch Aydan was called to have his EEG, he was ever so good sitting there while they stuck all those wires to his head, and didn't even try to pull any off which I thought he would do!
We got the results back straight away for the EEG and it was normal, they said they would need to do another one while he was sleeping as your brain waves are different while you are sleeping.
Nothing happened for the rest of the day, it was just more waiting around for the emergency scans.
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