Friday 11 January 2013

5th December 2012

Today wasn't such a good news day. That's the problem about being on ECMO, one minute you can have really good news, the next you can have awful news.

It's like the one step forward, one step back business...

His daily X-ray showed that his heart had been shoved over to the side, and his ECMO machine has been alarming loads, this means that he has a lot of internal bleeding in his chest, and the pressure from it is squashing everything :0(

They have decided to put him back on the oscillator because this should help keep his lungs inflated and help stop anymore internal bleeding.

Now, I have to say that this is really worrying me.

Last time he was on this machine they said it was damaging his lungs more than they already were, because of having to use really high pressures to get the oxygen into his body.

It's also worrying me about the holes that were already there! He's not been on the ECMO for that long, so if the holes aren't repaired yet (I googled and it said could take 6 weeks to repair) then it would be like picking a scab off! :0(

I had a word with the consultant too because I was worried about what would happen once he got to being on ECMO for 4 weeks as we were told 2-4 weeks, and he's already been on it a while!

She said that so long as Aydan was coping really well on it then it would be fine to continue if need be.

Well at least that's one relief! I was starting to panic that they would just have to turn it off or something!!

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