Sunday 25 November 2012

21st November 2012

Today Aydan was appearing to be doing really well, his sedation levels were still quite low, and they had started to lower his I.V. Medicines and replace them with oral medicines.

At one point daddy came running over to me in excitement because Aydan was really trying to open his eyes. So I went to look at him and you could really see that he was trying, his little eyebrows wiggled up, and I caught him looking at me twice! I squealed in delight!!

Unfortunately he had become a little too active, so they had to increase his sedation levels again! Boo!!! But it was lovely to see an insight into him again for a little while anyway!

Aydan hasn't been improving as much as he should have done, so we were told that we would have to go for an emergency CT scan of his chest and his head. This brought the news that Aydan would have to be taken off his oscillator and he might not survive the journey to and from the CT scanner.

This was an intense couple of hours, but he managed to make it there and back in one piece.

Next came an unexpected bit of news, it turns out that Aydan's lungs are still collapsed, and he still has a lot of air/fluid around them.

It was suggested that they were going to put another chest drain in, but they were not expecting it to work.

A consultant took us into his office and he showed us all the X-rays, he explained that the ventilator he is on is actually damaging his lungs and if he carries on it, his lungs won't repair themselves.

I was expecting him to say that Aydan would need a lung transplant, or worse, but they have said that they are going to put him on a special machine called ECMO (will find a link when we get home)

This machine basically has 2 large cannulas and tubes going into the side of his neck. This then takes his blood which will then act as his lungs by removing the carbon dioxide and replacing it with oxygen.

Aydan is in such a poorly state that we sat by the phone in the bedroom for nearly 4 hours waiting to hear any news.

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