Monday 12 November 2012

24th October 2012

Today was a VERY busy day for appointments.

In the morning we had an appointment with cardiology, at Leighton Hospital, to check that tumour in his heart.

Aydan giggled his little head off when he had the cold jelly and the probe put on his chest! The cardiologist said it was great that a child was laughing as apparently they usually cry! (Aw!)

Well at last we have some more wonderful news to share with you all!

THE HEART TUMOUR HAS GONE!!! :-D :-D :-D

So Aydan has been officially discharged from cardiology :0)

Our 2nd appointment of the day was up Alder Hey to see the Lovely Dr. Curran who is Aydan's Paediatric Neurologist.

It wasn't a very exciting appointment, but he has had a look at the video's I have of Aydan's random sleep twitching (will add a video below) but sadly the video I have doesn't have many twitching, sometimes he can be twitching constantly for hours!

Dr. Curran has decided to do a sleep EEG on the 19th November, and has asked me to wake him every 2 hours throughout the night to make sure he sleeps during the day. 

Although I have to say that the night time might be fine, but stopping him from sleeping in the hours car journey might be more of a problem....

We also have another appointment to see Dr. Curran in January 2013

Here is the video I showed him


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